Tuesday, July 11, 2006

Therapy

Sebastian had his first Physical Therapy and Speech Therapy Sessions today. I'm not really sure what the Physical Therpist was looking for but she mentioned that we would have a lot of work to do. She said his transitional movements needed work. Ok but she never let him transition from position to position. She always helped him. She mentioned that his skills were scattered and that we would need to get the Occupational therapist working with him. I don't think she got a good feel for Sebastian or his abilites.

I should mention that in Sebastian's medical files there are notes everywhere that state his injury was caused by "Non-Accidental Trauma" or NAT. This is not true. This of course causes most medical staff to jump to conclusions and assumptions and of course leads to biased help. Then again I could be reading the whole situation wrong and she was just ticked off at us because we were a few minutes late. Not our fault but how do you explain to the therapist that the hospital is worse than the DMV when it comes to processing some simple paperwork. We sat there for several minutes with NO ONE in the admissions windows or even on the floor waiting to be called up so that we could finish the registration process.

I've had enough of the hospital and the judgemental people who work there. I'm tired of having to defend myself everytime I go in there to get my little guy the help he needs. I'm tired of having to fight with medical personnel to ensure that they give Sebastian the care he deserves regardless of their feelings about me or the situation we find ourselves in at the moment. I am beginning to see why so many people in this country hate hospitals, nurses, doctors and anything to do with the medical field. It's sad to think that people who are supposed to help aren't more empathetic to their patients.
Ok off my soapbox and more about Sebastian.

The Speech Therapist was better. She did an evaluation of him and then explained what she saw developmentally. Sebastian is not far off the 9-12 month developmental track. He's pretty much where he should be Speech Pathology-wise. He is a slow talker just like Austin was at his age but he's not developmentally behind.

She explained to us that Sebastian's brain is still in the healing process and that the most healing occurs in the 6 weeks after surgery or injury.(We are in day 19 of this process) She told us that therapists now begin working with patients during this period of recovery or as soon after the injury as possible in order to maximize the benefits of therapy. They used to wait until the patient had gone through most of this 6 week healing time period to see how much they recovered and then design a therapy program after they saw how much the patient had recovered. Instead, they now feel that beginning therapy immediately helps the recovery process. She also mentioned that the brain would continue to heal itself for at least another year or two and that science is finding that this slower healing can continue for even longer periods after the injury.

So, I now understand better what the Speech therapist sees in Sebastian. We have goals set up for Sebastian and we have a schedule set up for him. I don't know what the Physical therapist is thinking and we didn't really set up any goals for Sebastian this time. We'll see what happens next.

I am bound and determined to get Sebastian fully recovered and if that means learning physical therapy techniques on my own and working with him at home then so be it. I have 2 beautiful little helpers,Rachel and Austin, that aren't going to cut him any slack and Sebastian is bound and determined to catch up to them.

Oh yeah did I mention that Sebastian is crawling. Not as fast as before but he can get around on his own. Go little man go.

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